
Lisha & Dawn recently celebrated their 33rd birthday, and it got me thinking of how blessed we have been with them. With them being preemies, and having a few complications, I kept taking them to a pediatrician in Portsmouth instead of a GP in town. We all have faith in the experts, and many times never question their diagnosis and advise on treatments. It was a mistake I made, as well. Both girls were behind in their development compared to their siblings, as expected in being 7 weeks early. Having an identical twin, though, helped me to see where they should be. Lisha began sitting up around 9 months, Dawn still couldn't at 24 months. Each time I questioned the Dr., he would answer the same, "One twin is almost always slower to catch up, but she will". She also had bent legs, and couldn't straighten them which worsened as time went on. Still when questioned, it was the same response. Finally, when going to Dr. Schlie for my bronchitis and having the 4 girls with me, he looked at Dawn and said, "Do you realise Dawn has Cerebral Palsy?" I was floored. He then advised me to take her to Children's for an evaluation. At that visit, Dawn was seen by 7 specialists (an all day visit). They confirmed Dr. Schlie's diagnosis, and really offered very little hope for improvement, only tried to prepare me with what to expect. During the 70's there was a therapist from Columbus that came to Chillicothe one day per month. However, they didn't recommend it. They told me of some surgeries she would face at different intervals to make things easier. Needless to say, I was devastated. When I returned home, my first thought was, "Well, her calf and thigh muscles weren't developed as Lisha's were, so I will hold onto her arms, and we will all walk every evening." At least I can help her to be stronger, and help her legs look more developed, as people were already comparing her to her twin. Next, I decided to find out everything I could on brain injuries (which is the cause of Cerebral Palsy), so that meant many hours at the public library. I was astonished to find stories of severely injured patients, who did get therapy, and could learn to first move in the water, then crawl, and even walk again. These were adults as well as children, many who sustained their injuries in automobile accidents. That's all I needed to prod me on. The walking continued, and we also began sitting cross legged on the floor (to stretch those muscles and hopefully prevent the hip surgery that was on the list to be done). I didn't want Dawn to feel any different than the rest of us, so we all sat this way. Dawn, of course, had to be propped up with pillows on both sides, and with her back against the sofa. Within a few months, Dawn was able to walk while holding onto one of my hands. I decided against braces on her legs, because I didn't want her dependant on them (another thing I'd read). It was an option we could have chosen later, if needed. Over the years, I had to come up with a lot of creative ways of doing things so that Dawn would be stronger and develop, and would not feel "different". However, kids are cruel, and during her school years, the one way kids could tell them apart was because "Dawn walked funny". She also had to wear special shoes (boots) at times, because of injuries to her achilles (spelling?)tendons. Dawn excelled in school, and played in sports and cheerleading. All of this made an impact on all of us in one way or another. For Dawn, it may explain why she absolutely did not want to walk down the aisle at her wedding this summer. Well she did, and did it beautifully. Dawn will always have to deal with her motor development, and keep up with her exercises, but God has truly blessed us. Now, back to Lisha who was developing normally, although slightly behind in her first year or two. She did, however, have a white patch completely covering her pupil area in one eye. You guessed it-for 2 years, every time I asked the Dr. about it, he'd say, "Don't worry, it will go away on it's own." He was right, by the time she was 3, it had gone away. When I enrolled the girls in Kindergarten, I was told, "Did you realise Lisha is blind in one eye?" Shock! Once again, I was advised to take Lisha to Children's for an evaluation. They discovered such a thick series of scar tissue over her eye that even lasar could not remove it. After questioning me, they told me she'd probably had a scratch from birth that had become infected. Because it had never been treated, the scar tissue kept building over top of scar tissue. She does have some peripherial vision in that eye, but they're still unable to do surgery to correct it. I guess, I just want to say, many things happen every day that we have no control over, but we each have common sense, and the right to question. Don't ever feel that you have to accept what doesn't feel right, and even if it does make sense. We have to be our own advocates for good health for our families. Sometimes, it can change the outcome, and sometimes, it can just help us to learn what we can do to make it better. Once again, I know how blessed we all have been, and how blessed we are today.
OK, this isn't exactly a birthday story, but then again, it may be. But that's how my mind works sometimes-well, most of the time. I'm going to try not to proofread this, or the story may never be told.